Hi! My name is Kyle. I’m four years old and I have aplastic anemia.
My name is Kyle and I am four years old. My favorite things in the whole world are fish and sharks and whales. Maybe one day I will get to swim next to a great white shark! My favorite game is Angry Birds, and I am really good at it. I love super heroes, too! And I love my baby sister, who is only eleven months old. My parents always tell me my birthday is a really lucky day because I was born on 7/7/07.
I hope you will help AADP and me find someone who will be my lucky match!
We are thrilled to announce that Kyle’s blood cells have begun to regenerate on their own! Kyle was seeking a bone marrow donor for a transplant because his cells could not do this simple job on their own, requiring Kyle to have regular blood transfusions. While we have been searching for a donor match for Kyle, he has also been receiving immune suppression treatment of ATG during inpatient hospitalization and also taking cyclosporine medicine twice a day. Kyle’s positive response to the medication is a surprise blessing as the odds of success are not well understood. Due to the severity of Kyle’s condition it was critical that a donor be identified immediately in the likely event the medication did not work.
The fight is not over. Since his cells have been regenerating, for the next month or so, Kyle’s doctors have placed a hold on his transplant to confirm that the medication will continue to work. If the medication does continue to work, there is still a significant chance for relapse in the next 2-10 years. In the case of relapse, Kyle will need an immediate transplant.
Since December when we started this campaign to save 4 year-old Kyle, there have been over 2,500 people of mixed ethnicity that have registered as bone marrow donors. You and the countless others have helped to save Kyle by: registering, hosting drives, donating time and money, sharing his story with all of your friends online and offline, and utilizing your creativity to help in numerous other ways.
We are also happy to announce that with your help, we’ve been blessed to find not one but two matches for Kyle!
Due to the transplant hold, these matches have not gone through the final processes involved with agreeing to become a donor. They will not be contacted until the transplant becomes necessary. This means one very important thing: registered donors should keep their contact information updated in the NMDP system. We would also like to continue the search should either of these matches not be available to donate in the future.
We would like to thank everyone who has helped to share Kyle’s story. Words cannot express how thankful we are for all you have done in the past few months. Your efforts have directly helped to save Kyle and we couldn’t be more thankful!
Register at a local donor drive, view drives, here
Cannot attend a drive? Register online: http://join.bethematch.org/kyle
AADP is faced with the challenge of finding and enrolling committed individuals into the Be the Match Registry. It is our goal to give the chance to register to everyone who is able and willing– especially in the minority community.
It costs $100 in administrative and lab fees to enter one donor into the Be the Match Registry. This cost is now paid for by a combination of donations from the community and a grant from HRSA. However, these funds are not inexhaustible. We need more help from the community and individuals like you to continue to make donor registration accessible to everyone.