Survivors Stories

Hello there! My name is Kierean, but my family and friends all call me Kiwi. I am one year old and I was born with a rare lysosomal disease called MPS1 Hurler Syndrome. My family and friends love ...
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Anika – move from patients to survivor: Anika is a bright and vivacious 17-year old Indian American girl. She is an Indian classical dancer, singer, artist, has a black belt in Taekwondo who also ...
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At age 3, Evan was diagnosed with a rare, genetic immune disorder called chronic granulomatous disease (CGD).To stay healthy, he went to the hospital every month to receive IV medication and takes ...
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On January 10th 2019, Tania was diagnosed with acute myeloid leukemia (AML). She was admitted to a hospital where she started chemotherapy. She’s responded well to treatment, but her leukemia cannot ...
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After seven years of trying to get pregnant, we were ecstatic when we were blessed with Alesha. When Alesha was born, she was just perfect. Her good health did not last very long, however. At ...
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From Maria’s husband. “I am Gabriel Elias, father of 3 beautiful children and husband of the most amazing wife. Sometimes we go through life without noticing the little moments, but that all changed ...
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Kenny has acute myeloid leukemia, an aggressive bone cancer with a FLT 3 mutation. Because the FLT3 Mutation will cause his cancer to come back after chemo in a few weeks, he is in desperate need of a ...
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When you think of your wedding day, you don’t think of saying your vows in a sterile environment, in the hospital while undergoing chemotherapy. Well, that is exactly what John and Cynthia did.  John ...
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Anantha is a husband, a father of two children, and a grandfather to a grandson he loves more than anything.  On May 17, 2018, Anantha was diagnosed with acute myeloid leukemia (AML).  He was born in ...
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Roshlind is a 16-year-old girl from Calgary, AB, Canada, who was recently diagnosed with 2 very rare diseases called aplastic anemia and Paroxysmal nocturnal hemoglobinuria (PNH), which only affects 1 ...
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It is every parent’s worst nightmare for their young child to have a life-threatening disease. Sadly, it is one that Camllie’s parents went through. 3-year-old Camllie is an active child who loves ...
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My daughter Vartika (Vicky) was born on December 15th, 2017. A few days after her birth, Vicky was diagnosed with a rare genetic disorder, Severe Combined Immune Deficiency (SCID). This means that she ...
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