In The Spotlight – CGD (Chronic Granulomatous Disease)

• Ally has a rare disease called CGD, it stands for Chronic Granulomatous Disorder. It is a life-threatening and life-limiting condition.
• People with CGD can’t fight bacterial or fungal infections effectively. •
• They have a faulty bone marrow gene, which means that some of their white blood cells, called neutrophils, don’t work properly.
• Infections can include abscesses, enlarged lymph glands, unusual pneumonias or bone infections. People with CGD may also get chronic inflammation, including swollen gums or bowel inflammation.
• It’s a rare condition. In the UK, CGD affects about four to six people in every million. According to estimates, in the US and Europe, nearly 6’000 people have CGD.

Ally will need a bone marrow transplant in order to live a full and wonderful life, register as a marrow donor here     http://my.bethematch.org/AllysFight 

CGD Society – Home Page
The CGD Society – supporting families affected by chronic granulomatous disorder, a rare genetic condition that affects the immune system.   http://www.cgdsociety.org/

Please Follow Us!