After seven months of treatment, AJ’s doctors had to tell us that further treatment including radiation was unlikely to have any significant benefit.
We were heartbroken to learn that AJ would not be cured of his cancer. The thought of our one and only baby not being here with us was excruciating. But we have been reassured and we believe that everything that could have been done for AJ, was done.
On May 26 we brought AJ home. Since then, so many of our loved ones have come to visit and spent time with the most amazing little man in the world. He continued to charm everyone with his infectious smile. AJ demanded Ritz crackers as they had become his new favorite snack and ate them by the handful.
But as the days went by his breathing became labored. He grew more tired every day. And it became harder to keep him comfortable. We knew our time together with him was growing short. We tried to burn the feeling of holding him close into our memories. We expressed our love and thanked him for the time we had together. We told him that we knew he was struggling and if he needed to go, it was okay and we will miss him everyday for the rest of our lives.
Early this morning his breathing grew shallow and slow. We knew it would be very soon, so we picked him up and held him one last time.
Alexander Justin De Leon Ison passed away at home in his mother’s arms at 3:30am, June 10, 2021. He was seventeen months old.
We like to think he was greeted in Heaven by his grandmothers. Both had passed before the birth of any of their grandchildren. AJ is now the first one to meet them.
We will hold his memory close to our hearts and our love will last forever.
AJ’s lasting impact to the world might be the huge number of volunteers that registered to be bone marrow donors after hearing about him. Many of you have registered in hopes of helping him specifically. That unfortunately did not happen. But please, you can still honor him by donating to whoever needs bone marrow if you are asked to in the future.
You all have been with us throughout this difficult journey. We are forever grateful for all the love, support, and prayers you, your family, and your friends have given us.
With all our love and gratitude,
Eric and Maria