Those who know Dylan know that she’s a force of nature, extremely strong, incredibly sensitive, creative, tender, and silly. She just turned eight years old, but her life has already taken a detour. Dylan’s parents noticed unexplained bruising in unusual places. But the problem grew to be much more than they feared. Following blood tests, her bone marrow was biopsied and Dylan was diagnosed with severe aplastic anemia. She is in need of a bone marrow transplant, but she has not found a matching donor. Dylan’s middle name is Hope. Help us give hope to Dylan and other patients in need of a match by signing up to be a donor. She is South Asian/Caucasian (Norwegian), so she will most likely match with a donor who shares the same ethnic background.
https://www.caringbridge.org/visit/dylanghoorah
Our dear friend Dawn has just launched this drive for Dylan to encourage bone marrow donor registration with Be the Match.
It is hard for me to type the cold hard facts, but here they are:
- Dylan has had over 15 blood and platelet transfusions since being diagnosed with aplastic anemia in March. She depends on these transfusions.
- She is currently undergoing immunosuppressive therapy. There is a lot to be hopeful for. But the truth is that we don’t know if it will work or for how long, and even if it works there may be other serious complications and new diseases that develop from this down the road.
- The only cure to aplastic anemia is a bone marrow transplant.
Manan says
Hi I am from India. I had registered on be the Bethe match and given my samples.
My name is Dr Manan Desai.
Can you check with them if I can be Donor?
Carol says
Yes, you are still on the registry but have not matched anyone yet. If you match with Dylan, Be the Match will give you a call.